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Can I just take a minute to clear something up?

This is an issue that comes up for me with patients probably every week if not most days. It’s about pain. Many patients present to the doctor with a main problem which is about pain. The way doctors are trained is to focus on making a diagnosis. Now, that’s a good idea. I always tell people we can’t figure out what might help until we understand what’s wrong. But the problem arises with the dominant medical paradigm, which is known as the “biomedical model”. This model has been around for three or four hundred years now and it focuses on the concept of disease as a lesion. By lesion I mean something objective which can be observed, or measured.

Two problems arise from this rather mechanical model. First is that if a lesion can’t be found the patient’s symptoms tend to be dismissed as psychological (or worse – pretended!) Anyone who understands health and illness will know that this is nonsense. You don’t need to find a lesion to accept, understand and attempt to alleviate a human being’s suffering. Second is that symptoms and lesions do not exist within a linear relationship.

Pardon?

Well, let me take the example of pain. Let’s imagine someone has a disease where we can see and measure the lesion – cancer would be a good example. There is no simple relationship between the cancer and the amount of pain a person experiences. Two people with the same cancer of the same size in the same part of the body can have utterly different experiences of pain. And any one person can have a cancer that changes size (getting bigger or smaller) without any significant change in their experience of pain.

There is no direct, linear relationship between a pain and a lesion.

Strangely, a lot of people don’t understand that (and I include a lot of doctors there) but it should never be forgotten. Pain needs to be addressed, understood, and managed as pain. It cannot be understood, and managed effectively as a manifestation of a lesion.

This is the value of a holistic, patient-centred approach to illness. The focus is on the person and their experience, not exclusively on their lesions. Pain is real. It doesn’t become unreal in the absence of a lesion.

Time for a change

snow seat, originally uploaded by bobsee.

Some people are very sensitive to change. I’ve met people who become unwell at every change of the weather (quite a problem for someone living in Scotland I can tell you!). There are even people who are sensitive to the melting of the snow. The melting of the snow? Yes. Strange, huh? But really such a sensitivity is a particular hypersensitivity to change.
The reality is that everything is always changing. It’s the one constant in the world. Nothing, but nothing, stays the same.
We’re all different though. Some people relish change. They love it, thrive on it. Others are terrified of it and pour all their energies into trying to keep as much the same as possible.
How about you?
What changes do you relish? And which do you try to prevent?

Just a drop……

natural light bulb
dripping red berries
droplets on red
wet blossom

It snowed in Glasgow today. Heavy showers of big flakes but they quickly melted away leaving the ground dark and wet. I took my camera out into the hospital garden and captured a few drops of water.

We construct our sense of self, and we experience our own very unique lives through the tool of narrative. Narrative means the story and the way its told. This is something I look for all the time during my consultations. I’m interested to notice not just the words people use but the tone of voice, the speed of speech, the hesitations, the facial expressions and the body language. The way a story is told is actually what gives the content of a story its meaning.

Have a look at this short French film (English subtitles)

It’s brilliant. Starts bland, with words that don’t convey much, but with a small piece of direction the words are said again in an entirely different way and WHAM – if it doesn’t get you, I’ll be surprised! (Well, it got me sniffing anyway!)

Tell me what you think. How aware are you of the way you say things? How aware are you of the way things are said to you?

Doctors are expected to be sure. I can’t remember the actual reference but years ago I read a study conducted by a UK General Practitioner where he randomly allocated his patients with acute viral infections (I think) into two groups. One group he told he knew exactly what was wrong with them, it wasn’t serious, there wasn’t a treatment for it but it would soon be better. The other group he told he thought he knew what was wrong with them but couldn’t say for certain, didn’t think it was serious but expected it would soon go away by itself and there wasn’t a treatment. In both cases he was telling the truth. The emphasis was on greater or lesser certainty. He found that when he used the “I’m sure” style of consulting, the patient’s satisfaction and the outcomes were better. He called this the “good consultation”. That study always bothered me because it seemed to me that the best consultation was the one which didn’t pose the doctor as the all-knowing expert. And yet….I also knew that the doctor who didn’t seem to be sure of anything didn’t do his or her patients many favours either.

Jerome Groopman, in How Doctors Think, says

What we know is based on only a modest level of understanding. If you carry that truth around with you, you are instantaneously ready to challenge what you think you know the minute you see anything that suggests it might not be right.

I agree with that. We often forget that what we know is always only a little. My first consultation with a patient lasts one hour. It is very common for people to say at the end of that hour that they feel they’ve been listened to properly for the first time. I hope they feel understood, but I always say in my summing up with them, that to spend an hour with someone might seem a long time in medicine but who can know a person in an hour? Yes, I hope I understand this person better and I hope they have gained some understanding of themselves too, but I can surely know only a very little about their life in one hour. Goodness, it takes us a lifetime to understand ourselves let alone another person! I find it helpful to keep that in mind, to never assume I know all that I need to know about a patient. There will always be more to discover, and always be a better understanding to be reached. I also agree with that second sentence about noticing things that don’t fit and being challenged by that. Certainty is really the enemy of understanding in that regard. People judge others, or claim to know “for sure” all that needs to be known about a person or a subject, and that stops them from thinking.

I find that latter issue common amongst people who dismiss homeopathy because it doesn’t fit with their current understanding of how the world works. Actually it amazes me that many such people claim to be “skeptics” because the original skeptics never did claim certainty!

Jerome Groopman describes three kinds of uncertainty – that which comes from not being in command of what is known; one from the limitations of what is known by humankind; and the third is the inability to distinguish between these two limits – in other words when we are not sure it our lack of certainty is due to our personal knowledge or to what is known by humanity. That’s quite an interesting take on this issue. We can never have perfect personal knowledge and often we’ll doubt because we think if only we learned a bit more we’d know for sure, when actually everybody shares our imperfect knowledge.

I do think that certainty is the greatest enemy of an open mind. I often come across writing on the web, or in books, where the person’s mind is shut tight – all because they think what they know is the absolute Truth, and nobody can tell them anything. However, we do need a degree of certainty to be able to function on a day to day basis. Groopman again –

the denial of uncertainty, the proclivity to substitute certainty for uncertainty, is one of the most remarkable human psychological traits. It is both adaptive and maladaptive, and therefore both guides and misguides.

and

there are limits to living with uncertainty. It can paralyse action.

So what to do? Be more sure? Or try to live with a greater sense of uncertainty? Carmine Coyote recently wrote about this in Slow Leadership. I liked her conclusion –

The options you have today should be seen as “templates” that you can start to modify and shape into something better; not some immutable position that must be accepted unaltered. Those who favor a position always like to characterize their own as the only possible one, and frighten you with the supposed dangers of the opposite choice. Their opponent do the same thing. Neither group want you to consider a middle path, since that weakens their claim that you must choose only between them. In reality, there are always going to be other options, many that haven’t yet been discovered or created. Some of these may be much better that those available today. If we aspire to be leaders of any kind — or even just to live a full and happy life — it’s our job to try to find them. Choosing only between what’s currently available appeals to the macho mind because it’s quick, simple, and appears decisive. Finding new options requires time, thought, and the willingness to sit with uncertainty for maybe long periods — all things that are anathema to today’s short-term,Hamburger Management leaders. It’s that attitude that helped to get us into the mess we’re in.

Excellent. So, that’s what to do, isn’t it? It’s decisiveness based on careful attempts to make your best understanding, whilst keeping you mind open to alternatives and new information. Essentially its about living consciously with the knowledge of uncertainty and making the best choices you can make each day in the light of your present understanding.

As is so often the case, there’s no black and white, right or wrong answer to this. We are dynamic, constantly grow

Reflecting

trees in the stream, originally uploaded by bobsee.

I must confess I find reflections entrancing.
They catch my eye. Stop me in my tracks.
Maybe it’s because the world looks upside down or back to front in them. Things aren’t where you’d expect them to be.
I’m glad of reflections. They make me notice the world when I’m maybe drifting, unseeing. We do that a lot I think. Float along on autopilot. Drift through a zombie life.
It’s good to stop, to notice and to reflect. Wakes you up.
The hero life is a conscious life. An aware life. A life where you slow down and take time to reflect

Bloggers choice

Amy has nominated me for Best Health Blog – if you click on the badge top right it’ll take you to the Blogger’s Choice Awards to add your vote (if you’d like to!)

While you’re at it, Amy’s been nominated for three awards – photography, writing and parenting. Go visit her blog and see what you think.

Who’s Amy? She’s my amazing daughter of course! Am I biased ? You bet! But, seriously, don’t take my word for it, go and make up your own mind.

Here’s another study which shows the health benefits of writing about your experience. We all use narrative to make sense of our lives, so you’ll understand that writing about our experiences can help us to do just that – to makes sense of our experience. However, more than that, narrative is a creative, expressive act. It’s a way of affirming our existence, connecting to others and of growing. It helps us to develop.

In this study 71 patients with cancer were asked to write about “How has cancer changed you, and how do you feel about those changes?”

After the writing assignment, about half of the cancer patients said the exercise had changed their thinking about their illness, while 35 percent reported that writing changed the way they felt about their illness. Three weeks after the writing exercise, the effect had been maintained. Writing had the biggest impact on patients who were younger and recently diagnosed.

Changing how you think and how you feel changes your everyday experience so it’s no surprise these respondents reported improvements in the quality of their lives.

It’s interesting  to note how important it is to write about feelings to get the good effect –

“Thoughts and feelings, or the cognitive processing and emotions related to cancer, are key writing elements associated with health benefits,’’ said Nancy P. Morgan, director of the center’s Arts and Humanities Program. “Writing about only the facts has shown no benefit.”

One final point worth noting is that whilst, as you may have expected, many wrote that the experience of cancer had been life-changing, perhaps what is more surprising is that many made statements about the gains which they had obtained from the cancer experience.

One patient wrote: “Don’t get me wrong, cancer isn’t a gift, it just showed me what the gifts in my life are.”

twilight, originally uploaded by bobsee.

We are all different. One of the most obvious differences between us is temporal. Are you a morning person? Do you leap up out of bed on waking ready to engage with a new day? Or do you slowly emerge from a distant faraway Land of Nod, taking your time to gingerly explore the morning light?
Do you come alive in the evenings?
Are you a night owl?
Being aware of when you’re at your best and when you’re at your least effective can help you lead a better life by planning to do what you want to do as often as you can at the times which work best for you.
When is your best time of day for reading? And when is your best time for doing something creative?

Curing depression?

A study by Professor Kirsch and colleagues of Hull University has set a bit of a cat amongst the Pharma pigeons. It’s a pretty technical study but in summary what they did was got access to all the trial data submitted to the FDA by drug companies applying for licences for the big four new generation antidepressants – fluoxetine, venlafaxine, nefazodone, and paroxetine. This data, by the way, included trials which were not published but which they obtained access to through a Freedom of Information application.

What they found was that there was no evidence the drugs were more effective than placebo in patients with moderate or severe depression. They did show that the worse the depression at the outset of the trial, the greater the effect of the drug over placebo, but they did a fascinating analysis which showed that the explanation for this was likely to be the decreased placebo response in more severely depressed patients.

Given these are drugs with well known side effects and dangers, and that some 16.2 million prescriptions for these drugs were made in England in 2006, this study comes as something of a shock.

The responses to this study are even more interesting. Most experts and authorities quoted on the news items today have made the point that we all know that talking therapies work for depressed patients but that drugs are prescribed because there are insufficient numbers of therapists available. This is a shocking explanation. Drugs as a substitute for people. What’s the problem? Insufficient funds for the provision of enough therapists? Seems so. So why do we prefer to spend literally millions on drugs which probably don’t work instead? The answer lies partly in the way medicine is currently delivered. The priority is given to drugs. You can’t placebo control human care or loving attention. Maybe it’s time we began to change our priorities and save the drugs for when therapeutic relationships are not enough.

Does this study mean that people taking antidepressants should stop them because they are useless? NO. The problem with all this so-called “evidence” which comes from highly artificial clinical trials which seek to remove the human factors and average out the results to the point of dismissing the range of difference within the study group is that it fails to show us who might benefit most from a particular treatment. Within these studies are individuals who are substantially improved by the drug, and others for whom taking the drug was of no benefit at all. However, it is reasonable to assume that drugs alone are not enough. Depressed people need more care than mere pharmaceutical care.

Does it mean that we should invest in trying to treat depression with alternatives to drugs? YES. It’s about time we gave clinical priority to people in medicine, investing in sufficient numbers of well-trained doctors, nurses and therapists to give ill people the time and attention they need to become well – if possible, without the risks of prescribed medicines.