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Pamela Hartzband, MD and Jerome Groopman MD from the Beth Israel Center writing in the New England Journal of Medicine make a strong plea for a return to professionalism and humanity in health care. Here’s the problem, as they see it….

We are in the midst of an economic crisis and efforts to reform the health care system have centered on controlling spiraling costs. To that end, many economists and policy makers have proposed that patient care should be industrialized and standardized. Hospitals and clinics should be run like modern factories and archaic terms like doctor, nurse and patient must therefore be replaced with terminology that fits this new order

It strikes me this current model of health care is not sustainable. Drug costs are spiralling way out of control and those in power seem to think the answer to health problems is to use a “Fordist” solution, creating health care facilities as factories – treating the mass with pre-ordained treatment plans delivered by people with technical skills.

They highlight the distorted use of “evidence based” approaches as a key problem

the new emphasis on “evidence-based practice” is not really a new phenomenon at all. “Evidence” was routinely presented on daily rounds or clinical conferences where doctors debated numerous research studies. But the exercise of clinical judgment, which permitted the assessment of those data and the application of study results to an individual patient, was seen as the acme of professional practice. Now some prominent health policy planners and even physicians contend that clinical care should essentially be a matter of following operating manuals containing preset guidelines, like factory blueprints, written by experts.

This “industrial” way of delivering health care diminishes the professionals as much as it does the patients.

Recasting their roles as providers who merely implement prefabricated practices diminishes their professionalism. Reconfiguring medicine in economic and industrial terms is unlikely to attract creative and independent thinkers with not only expertise in science and biology but also an authentic focus on humanism and caring. When we ourselves are ill, we want someone to care about us as people, not paying customers and to individualize our treatment according to our values. Despite the lip service paid to ‘patient-centered care’ by the forces promulgating the new language of medicine, their discourse shifts the focus from the good of the individual to the exigencies of the system and its costs. We believe doctors, nurses and others engaged in care should eschew the use of such terms that demean patients and professionals alike and dangerously neglect the essence of medicine

Stumbled across this quotation from Mencken yesterday –

“When they speak of the dangers of Americanization… [it] may be described in general, as the decay of spiritual values that has gone on among us during the past two generations. It may be described, in particular, as our growing impatience with the free play of ideas; our increasing tendency to reduce all virtues to the single one of conformity, our relentless and all-pervading standardization. This is what all Europe fears when it contemplates the growing importance and influence of The United States… By Americanization it means Fordization – and not only in industry but also in politics, art and even religion.”

When I read this, a passage from Seth Godin’s “We are all Weird” sprang to mind….

Mass is withering. The only things pushing against this trend are the factory mindset and the cultural bias toward compliance.

The control culture is crumbling. Remember that classic Apple ad?

Think Different

Celebrate your uniqueness. You really are a one off, and nobody, but nobody is a better expert in your personal experience than you are. We should resist being standardised. Be a hero, not a zombie.

Writing

I love to write. Why is that? Well, Nicole Krauss, writing about Roberto Bolano in the Guardian last week beautifully describes one of the main reasons….

Writing is always an expansion: a writer, given only one life, is compelled to manufacture other lives, other stories, other realms. The one life is not enough; it is necessary, for whatever reason – an overabundance of language or imagination, curiosity, desire, a distaste for finalities – to multiply the possibilities.

 

I heard on the news last night that 70 people had been killed by a bomb in Somalia. What do you think about that? What do you think about those 70 people? What did the terrorist think about those 70 people? Did he, or she, know any of them? Could the bomber name any of them?

Reduction of individuals to a mass, by terrorists, by journalists, by governments, businesses, scientists, blinds everyone to the absolute uniqueness of every person.

It’s not possible to see the uniqueness of an individual when we absorb them into a mass.

But there’s another way to lose the uniqueness of individuals. Go in too close. In Medicine we focus on a part of a person – their blood pressure reading, their cholesterol level, their “lesion” – but when we do that we lose sight of the individual, the person whose body we are peering into, and in so doing their uniqueness is lost in their becoming a “case of hypertension”, or “a cancer patient”.

Zoom out to the mass, and we lose the individuals and everything which makes them unique, makes them uniquely human. Zoom in to the lesions or the biological parameters, and we lose the individuals and everything that makes them unique (even looking at an individual’s DNA doesn’t reveal anything like their full uniqueness)

There’s only one level at which we can see a person’s uniqueness – the level of the person – one to one, me to you, you to me. That’s what I’ll be doing again today. Sitting listening to individual, unique stories of men, women and children. I think that’s what being a doctor is about – fully focusing on the uniqueness of each and every person I see for the time I spend with them. The knowledge of the mass might enter the exchange, the knowledge of the parts might enter the exchange, but the consultation has to begin and end with a clear focus on this whole, unique person.

Living in the now

living in the present

In the US, they’ve set up a research institute, The Patient Centered Outcomes Research Institute, with a funding of $600 million a year!

It’s good to see a resourced emphasis on patients. The current dominant model in decision making in health care policy often seems to put the average, or the group, over that of the person. The evidence based medicine model originally recommended taking the statistical results from group experiments, then working out with individual patients what is best for them. I’ve heard a doctor say she was taught that if a patient takes an evidence based drug and says she is no better, then either she hasn’t taken the drug, or she is lying. That strikes me as bonkers. One way to get a more relevant decision for individual patients is to use “patient centred outcomes”.

The new US research institute will focus on the following four questions –

1. “Given my personal characteristics, conditions and preferences, what should I expect will happen to me?”

2. “What are my options and what are the benefits and harms of those options?”

3. “What can I do to improve the outcomes that are most important to me?”

4. “How can the health care system improve my chances of achieving the outcomes I prefer?”

Shouldn’t these ALWAYS be the questions a doctor and a patient should consider together? I think so.

october fruition

In October, I love to see all the berries splashing their colour amongst the green and golden leaves of autumn. It’s the month of harvest thanksgiving in many countries and cultures too.

So, what can you think of this year so far, which has come to fruition? For me it’s my BE THE FLOW project – the website, the beautiful, colour, photographic book of Be the Flow, the little black and white paperback, and the Kindle version too. You can find them all at www.betheflow.net

We are all Weird

I’m a great fan of Seth Godin’s work. His latest book is “We are all Weird“. Seth’s great at picking an eye-catching and provocative phrase (remember the purple cow?). So, he makes it clear what he means by “weird” –

In this manifesto, I’m not talking about weird by birth, I’m talking about people who are making an affirmative choice to be weird. Most people who make that choice are paradoxically looking to be accepted. Not by everyone, of course, but by their tribe, by the people they admire and hope to be respected by.

The key element of being weird is this: you insist on making a choice.

We all need to belong. Seth focused on that in his book on “tribes”. We like to associate with like minded people, with people who share our values and beliefs. In short, with people who share our choices. But we also need to know that we are all unique, that we are individuals. Remember the battle cry from “Braveheart”? FREEDOM.

Well, we all need freedom. The freedom to choose for ourselves, not being the least of the freedoms we need.

In “We are all Weird”, Seth shows how over the last century or two the concept of the “mass” has come to the fore. Mass marketing, mass consumption, globalisation of brands which seek to treat everyone as the same. Politicians like that. It gives them control. Marketers like that. It’s gives them the control. Goodness, those who seek to tell us all what’s best for us in health care irrespective of our individual needs, like that. It gives them control.

But the world is changing. It’s easier than ever now to express yourself. It’s easier than ever to be your own person, to make your own choices, and to find the others in the world who share those choices, to find your tribe. And this is completely changing the game. Power is shifting away from those who want to control the “mass” and into the hands of those who celebrate their uniqueness.

We’re seeing that in Medicine with the frustration of health care professionals and patients at being corralled into protocols and guidelines based on “evidence” which is statistical analysis of group experiments extrapolated out to be applied to the “mass”.

Read this book.

I recommend it. Read it and share it with your tribe. Be part of the change in the world. Be a hero, not a zombie.

Clear horizon over Tokyo

never seen this before ……

Clear horizon, Tokyo

Clear horizon, Tokyo

I’ve been visiting Tokyo every year for ten years now but I’ve never ever looked over the city and seen anything in the distance other than a haze. What a surprise I got when I looked out this morning (recently) and saw this far.
(Some of my Japanese friends say it was so clear because TWO typhoons were heading towards the mainland over the following 24 hours)

This week I had the enormous and delightful privilege of meeting Thomas Moore. He delivered a talk in the Medical Lecture Theatre at Glasgow’s Western Infirmary after visiting us in the Centre for Integrative Care, Glasgow Homeopathic Hospital, in the afternoon. So we had the chance to both meet him personally, and hear one of his really inspirational talks.

You know, Thomas, it felt like being “home”! I guess, you’d call it a “soul connection”. It all felt so right.

If you’re not familiar with his work, you’d do well to start with The Care of the Soul in Medicine, but really I’d recommend any of his books. I’ve enjoyed every one I’ve read.

He began by talking about mystery, and how none of us is completely knowable. Seems obvious, huh? But I’m repeatedly amazed how patients will say to me, at the end of a one hour first consultation, that I now must know “everything” about them. I usually respond by saying oh, we’ve only had an hour together, and you can spend a lifetime with someone and not fully know them, so really at this stage my knowledge must be very slight. But I know what they mean. The process of a holistic, non-judgemental, compassionate consultation, forms a strong (what Thomas would call “soul”) connection. The patient feels heard, they feel felt, they feel understood. However, I thought it was great to be reminded that we are all unknowable, that we all have unfathomable depths. It sets up a certain humility of practice and of living.

Thomas’ idea of “soul” seems very common sense and right to me – the best way to grasp it is to think about the phrases we use such as “soul music”, “soul food”, “soul mate” and so on. It’s a deep sense of being connected to other and to the world in which we live. He talked about some of the elements we identify as important in creating a good life, a soul-full life – friends, food, home, stories, the architecture of our living spaces for example. Everything about sharing, and about really experiencing our every day reality – what I’ve mentioned in this blog a number of times using the French phrase “emerviellement du quotidien” – the wonder, or amazement, of the every day….

If you ever get a chance to hear Thomas, grab it! You’ll have a soul-full evening!